Since my project is in design phase, I don't get to see interesting benchmarking everyday. I'll keep this thread as live thread whenever I find something interesting.
sicklecelltrait.org website is established by Cincinnati Children's Hospital Medical Center. Many people might not be aware of Sickle Cell Disease (SCD). It is the most common genetic blood disorder in the United States. Sickle Cell Trait (SCT) is different from Sickle Cell Disease in that a person with SCT can be very healthy, but his/her abnormal gene might be passed along to a baby.
The website is intended for four different populations: Teens & Young Adults, Pregnancy & Family Planning, Parents & Families, Athletes. Different contents are created for intended audience. The website used easy-to-understand language to explain Sickle Cell Trait and related issues. Graphic and video visualization enhances understanding about the issue.
Today I found this healthcare company called Omaha Health. They offer a solution called Prevent. Recently I'm looking into patient remote monitoring for a hospital project, and I find Prevent very interesting. Each participant is paired with a personal coach and online peer group for daily feedback and constant support. During the process, food, activity, and weight are tracked. Customized challenges are set up in different stages. Prevent claims that when using Prevent for weight control, they are much more effective compared with commercial weight loss programs.
MyFitnessPal + Under Amour = ?
At a presentation to my healthcare client, a man asked after I benchmarked MyFitnessPal for nutrition, "do you know Under Amour formed a partnership with MyFitnessPal?" This sound terrific. I looked it up after the presentation.
Under Amour acquired MFP in February. Along with UA's kingdom of sports gear, MFP is joining UA's performance and fitness community. Prior to MFP, there are three apps as a family: Under Amour RECORD, Endomondo, MapMyFitness. I have used none of them, but it sounds like a cool thing anyway. RECORD is an app that tracks round-the-clock activity. Endomondo is a good companion for running and walking. MapMyFitness also helps activity. MFP is unique in that non of the other apps track nutrition, yet they can the data from MFP to achieve a thorough overview of a person's health and fitness.
Were I have all those apps, I might spend time playing with my phone than actually exercising...
Teenager Cancer Trust
Teenager Cancer Trust is a charity that helps cancer patients in the United Kindom. Around seven young people aged between 13 and 24 are diagnosed with cancer every day in the UK. They need expert treatment and support from the moment they hear the word ‘cancer.’
Teenager Cancer Trust raises money by fundraising activities. They build, develop and maintain Teenage Cancer Units; they run national initiatives such as campaigning, training for health professionals, research and other activity to support young people with cancer.
The 28 teenager units across the UK are built together with patients themselves. The Teenager Cancer Trust did a study with The Future's Company to exploring the impact of the built environment. The study found that within Teenage Cancer Trust units, design works hand in hand with other key elements such as equipment, staff and culture to deliver the kernel of their philosophy. Design itself is an enabler and is inseparable from these other elements. At a high level, the key benefit delivered by this philosophy is the maintenance of ‘normality’ – manifested through the five key benefit platforms identified - Control, Comfort, Being Connected, Personalisation and Stimulation.
Makerspace at Children's Hospital
A Makerspace cart appears in Monroe Carell Jr. Children’s Hospital at Vanderbilt. Intended for AYA patients, this mobile Makerspace full of components, tools and accessories and even features a 3D printer engages patients and families, bringing technology to life in hospital.
“We wanted to see how we could support 21st century skills while also supporting patient care,” said Gokul Krishnan, who is the founder of the mobile Makerspace at Children’s Hospital, also known as Project M@CH. “Makerspaces foster collaboration and creativity. This is designed by patients for patients.” -from Vanderbilt University website
Upon seeing this title, you might ask, how is this cancer institute special. Because it is dedicated to adolescent and young adults. Adolescent and Young Adults, aka AYA, is a new healthcare concept in the cancer world. Having a cancer institute will significantly benefit AYA patients. While some types of cancer are considered pediatrics cancer, they also seen in young adults. If someone is a college student, and receives his pediatrics cancer treatment in an adult hospital, most likely he would have a bad experience, plus doctor's unfamiliarity with the pediatric cancer.
I know a young man with leukemia treated in an adult hospital. The doctors are not experts in this kind of cancer (of course), also, the patient himself feels it weird because the care team is not treating him very well. Worst of all, he got relapse two times. Eventually he came to a pediatric hospital. The doctors are experts in leukemia, the care team are wonderful. He occasionally feels as if treated as a kid, yet things go well most of the time.
Angie Fowler AYA Cancer Institute in Cleveland, OH would be a great place for AYA patients with pediatrics cancer. To AYA patients, their physical conditions are different from both children and adults, their psychosocial conditions also differ significantly from other age groups. The photos show the interactive wall in the clinic, which looks awesome!
For children diagnosed in the 1960s with acute lymphoblastic leukemia, which is the most common form of childhood cancer, the chance of survival was only 10 percent. Fortunately, chances of survival have increased to 80 percent today. Therefore, finding ways to help cancer survivors maintain a healthy lifestyle post-cancer is an ever increasing necessity.
SurvivorLink originated in Children's Hospital Atlanta provides a lifelong support for cancer survivors. SurvivorLink is where survivors can learn about lifelong healthcare needs and store and share Survivor Healthcare Plan and other healthcare documents.
Patients Like Me
My Memorial Day flight back to Cincinnati got delayed and eventually canceled. What is most memorable was not my sleep on the airport bench, but a story that I read inflight. It was story about Josh Sommer, who was diagnosed with a rare form of bone cancer that had invaded his skull in freshman year. He was lucky enough to be enrolled in a trail in his university, Duke. He co-founded Chroma Foundation that becomes his life's work.
The magazine feature says "with technology as tool, more people are taking the lead about their healthcare". PatientLikeMe is a social network that connects people with life-changing diagnoses to share their own experiences and data with respect to symptoms, medications, side effects, and to track their health overtime, help others with alike conditions and contribute data for research.
Recently PatientsLikeMe launched a Data for Good campaign. If members choose to public part of their diagnosis, symptoms, treatment and other kinds of information, they will be used for research purpose to help more people. I like how the tagline puts it: donate your data, for you, for others, for good.
Hey, I'm a Nanobot, I'm clearing up the enemies in my blood! Basically, I'll grab them and hand them over to my white cell, so that my little host will be in good shape!
OK, I'm playing a game called "Stem Cell Defender" developed by HopeLab. This series of video games is called Re-Mission.
Re-Mission 2 games help kids and young adults with cancer take on the fight of their lives. Based on scientific research, the games provide cancer support by giving players a sense of power and control and encouraging treatment adherence.
Each game puts players inside the human body to fight cancer with an arsenal of weapons and super-powers, like chemotherapy, antibiotics and the body’s natural defenses. The game play parallels real-world strategies used to successfully destroy cancer and win.
Youth and Pet Survivors
Caleb, a 15-year-old patient at Children’s Hospital Colorado, and Pepper, a 7-year-old Pomeranian patient at the Colorado State University Veterinary Teaching Hospital, share an unusual story: both have fought cancer and have lost vision in an eye.
Youth and Pet Survivors, a unique pen-pal program (Colorado Children's Hospital ), in which young cancer patients write to people whose animals also suffer from the disease. This allows children the unique opportunity to share feelings about having cancer with a safe, unconditionally loving animal. YAPS child participants report enhanced well-being; YAPS pet owners report a sense of contribution knowing that their pet’s illness can make a difference in a child’s life.
To me, a visual animal, what grab my attention first is their interesting illustrations in their website. With all those thoughtful graphics, I can immediately get familiar with what they intended to tell without getting too in detailed into words. I also feel very impressed that a medical- and tech-related company can own a visually-compelling website like this.
What Intelligent InSites offer is just like their name, intelligence in your sites. Assessment Management helps hospitals knowing the location and status of equipment and supplies, which potentially collaborates with CenTrak, a company that I talked about before. Environment Monitoring would check temperature, CO2, humidity level and O2 tank monitoring.