Upon seeing this title, you might ask, how is this cancer institute special. Because it is dedicated to adolescent and young adults. Adolescent and Young Adults, aka AYA, is a new healthcare concept in the cancer world. Having a cancer institute will significantly benefit AYA patients. While some types of cancer are considered pediatrics cancer, they also seen in young adults. If someone is a college student, and receives his pediatrics cancer treatment in an adult hospital, most likely he would have a bad experience, plus doctor's unfamiliarity with the pediatric cancer.
I know a young man with leukemia treated in an adult hospital. The doctors are not experts in this kind of cancer (of course), also, the patient himself feels it weird because the care team is not treating him very well. Worst of all, he got relapse two times. Eventually he came to a pediatric hospital. The doctors are experts in leukemia, the care team are wonderful. He occasionally feels as if treated as a kid, yet things go well most of the time.
Angie Fowler AYA Cancer Institute in Cleveland, OH would be a great place for AYA patients with pediatrics cancer. To AYA patients, their physical conditions are different from both children and adults, their psychosocial conditions also differ significantly from other age groups. The photos show the interactive wall in the clinic, which looks awesome!
For children diagnosed in the 1960s with acute lymphoblastic leukemia, which is the most common form of childhood cancer, the chance of survival was only 10 percent. Fortunately, chances of survival have increased to 80 percent today. Therefore, finding ways to help cancer survivors maintain a healthy lifestyle post-cancer is an ever increasing necessity.
SurvivorLink originated in Children's Hospital Atlanta provides a lifelong support for cancer survivors. SurvivorLink is where survivors can learn about lifelong healthcare needs and store and share Survivor Healthcare Plan and other healthcare documents.
My Memorial Day flight back to Cincinnati got delayed and eventually canceled. What is most memorable was not my sleep on the airport bench, but a story that I read inflight. It was story about Josh Sommer, who was diagnosed with a rare form of bone cancer that had invaded his skull in freshman year. He was lucky enough to be enrolled in a trail in his university, Duke. He co-founded Chroma Foundation that becomes his life's work.
The magazine feature says "with technology as tool, more people are taking the lead about their healthcare". PatientLikeMe is a social network that connects people with life-changing diagnoses to share their own experiences and data with respect to symptoms, medications, side effects, and to track their health overtime, help others with alike conditions and contribute data for research.
Recently PatientsLikeMe launched a Data for Good campaign. If members choose to public part of their diagnosis, symptoms, treatment and other kinds of information, they will be used for research purpose to help more people. I like how the tagline puts it: donate your data, for you, for others, for good.